The Naked Truth : In case of emergency break glass

truth

Does anyone know where I can get one of these little emergency things? How about an EASY button?

Because lately I’m feeling like one more thing is definitely going to send me over the edge of sanity. With last month’s fest of houseguests, H1N1 (or the equivalent), doctor related crap, the great scam and annoying neighbor dogs I’m pretty much out of any ideas on how to reach normal again. It feels never-ending.

I tend to think of myself as pretty laid back and easy going. About once a month I completely lose it and do a freak out and then everything goes back to normal. I’ve had several freak outs lately and let me say, I’m not feeling like things are back to normal.

Last week I said I felt like I wasn’t sharing things in enough depth. Maybe doing so would help. Well here you go.

I’m sharing.

Thing One:
Chick is starting preschool after Thanksgiving and that is a blessing for sure. Because it means she’ll be out of the house 4 days a week interacting with other kids. It’s a special preschool run by our county for children with development issues. As I’ve said before Chick has a speech issue which is tied into being developmentally behind for her age. This school will give her the speech therapy and the extra skills she needs to bring her back up to speed with other 3 year olds.

And they will even help her learn to use the potty.

Did I get a Gold Star school or what?

The only real issue is it starts at 8:30 and is 20 minutes from our house. Thor has to catch the bus at 8:40, school starts at 9. Have I mentioned that traffic around here is nothing short of nightmarish especially during the rush hours?

I don’t exactly know how I’m going to pull this one off but in order to get 4 delicious hours to myself four days a week I’m sure I can manage something.

Thing Two:
When I did the Autism walk I told you all that I’d share why Autism was important to me. It is important because Thor is being evaluated for an ASD (Autism Spectrum Disorder). We are awaiting evaluation through a study at Children’s Hospital in Philadelphia (CHOP) which is being conducted by the Center for Autism Research (CAR). As much as I don’t want Thor to have this I also want him to so we can move on and get the extra support he needs. I simply want an answer for the extra ‘things’ that make Thor who he is. I want him to excell in life and I can’t do that in the best way until I know what that way is. I wrote more on this over at The Literary Side The Challenges of Autism some time ago. I’ll cut and paste it below (It originally posted in May).

In any family hoping for a child most future parents say it doesn’t matter if the baby is a girl or boy so long as they are born healthy. Even in my own home it that was all that I had asked for. At birth my son, now 7, was a healthy baby boy, 7 pounds 12 ounces with a smattering of reddish hair and the softest blue eyes. In my own words he was perfect.

Like any child he grew up laughing and playing, always exceptionally bright he spoke his first words and immediately broke into sentences at age two. He questioned me and challenged me for answer to things he didn’t know. What is a question mark and when do we use it? How about a comma? Usual questions but unusual because they came from a four year old. My son does exceptionally well in school and his teacher has told us she highly suspects he has a photographic memory. He reads and spells on a fourth grade level, as he is about to finish first grade in June.

Exceptionally smart and yet he struggles in social situations. Relating to other children has always been a difficult for him. His father and I decided it was simply because he was so smart and didn’t care to play with children who didn’t play in the same rigidly ruled way he did. His rules or you don’t play. Type A personality shines through very clearly with my little boy. He is organized, exact and precise to the point of near frustration for me when I should do something that is out of sync with the way he wants it to be.

A range of behaviors that alerted me to a possibility that there could be other issues however, started when he turned four and half. Often he would become angry or have some repetitive behaviors. He didn’t seem to have any particular friends his age. He often preferred to play alone his teacher told us and didn’t engage his classmates. At the time we’d just completed our fifth move in his short life and this one to another country where none of us spoke the language. I attributed it to simply adjusting on his part to a new school and home, a new way of life. After all if I was stressed in making the move as an adult what had it done to my then four year old?

Progressing now into our third year abroad the behaviors and issues have compounded to a point where we can no longer ignore that there is more at hand. ADHD is one diagnosis I’ve kicked around in my head many times. OCD is another. He has been tested for neither as our preference is to have him tested by a pediatrician back home in the United States, where we hope to return within the next year.

Recently an old friend I grew up with contacted me through that amazing social medium, Facebook. In talking a mention of her child’s recent diagnosis of Aspergers had me Googling into the wee hours. I’d heard of it but I didn’t know enough about what it was. When I sat back after examining the articles and websites on this condition, one of a few falling into the frame of Autism Spectrum Disorders something clicked and I knew.

My child exhibited seven out of ten indicators for this condition. ADHD and OCD are also often found in children with Aspergers. I sat on this information for a few weeks unsure of mentioning it to my husband. Who wants to ask if it’s possible their child, extremely smart and seemingly well liked, yet not socially integrating, has a condition related to Autism?

I certainly did not want to ask that question and yet the more I read and the more I thought, I knew I had to. My husband confirmed that he’d researched the same himself and come to the realization that our seemingly perfectly healthy child exhibited too many signs of this high functioning form of Autism to be ignored.

My son is not yet diagnosed nor has any sort of evaluation been started. The preference is still to wait until we return home where we can communicate with doctors in our own language, medicine seeming to us to be far more advanced and syndromes like Aspergers are being diagnosed with a regularity. In other words we want to be where things are familiar. We know the system and the way things work and in our ideal destination to plant our roots where there are excellent children’s hospitals and services.

Saying the words “My child may have Aspergers” is not one I’ve come to easily or lightly and I will be selective with who will know the information both before evaluations, during evaluations and afterwards. It is after all a label and one I don’t want my child to have to deal with unfairly. I simply want him to be loved for who he is, a charming, sweet, brilliant little boy.

With occasional seven year old quirks.

For more information on Aspergers please visit: Aspergers Syndrome Support, Aspergers Disorder Homepage, What is Aspergers?


Answers are great. I only wish we’d get them soon.

In the end these are only some of the things that are going on at present and the rest with have to wait for the next edition of The Naked Truth.

You never know, I might even make it a weekly thing.

Do you have your own truths to tell? You can share them in the comments if you like. I’ll be sure to pass out your vice of choice afterwards.

I’m also chatting up my love of Paris so stop by here for the details One Travel Blog.

And go here for cheap air tickets!

Featured: Pier One chalkboard glass set with my own creative twist.

17 thoughts on “The Naked Truth : In case of emergency break glass

  1. I have a friend with Aspergers and he is the most awesome guy. He is quirky and funny and friendly almost to a fault. I hope Thor doesn't have the disorder, but either way I am sure you will have one special kid!

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  2. I'm glad you're sharing more. I think this is a great thing.I know you're relatively new to the neighbourhood, but could Thor maybe hang at a friend's house from 8.00 to 8.30 on the mornings Chick is in preschool, ideally someone who takes their kid to the bus?We've talked about my lack of knowledge about ASD before, but after reading the links you posted about Asperger's, I was faced with a question: what's the difference between a kid who's smart and a bit quirky and one who has Asperger's? When I read the description, honestly? It sounded like me as a kid. Now maybe I have been living without a diagnosis for 35 years, but I find that unlikely.(Understand that I am not criticizing or questioning the validity of any diagnosis… just trying to contextualize it.)

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  3. Sending you a BIG gold star. I volunteer for an organization treating kids on the autism spectrum. From high functioning with ASD to Severe Behavior. There are leaps to go in terms of information but there are SOOOO many resources available including parent groups. Good luck with all the juggling.

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  4. That is awesome that you found such a great school, it's not too far away either. Graham's old preschool took us 25 min to get to each way and it did get old but I loved that place. I think you're going to have to end up taking Thor directly to school every day vs having him ride the bus. But it'll be worth it for Chick to get the therapy she needs. From everything you've written about Thor, he sounds like a pretty cool kid. Here's hoping you get the answers you're looking for so he can move forward…Nice to see you sharing! 😉

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  5. Thanks for sharing your ordeal, I hope everything works out. My youngest had speech issues when he was in pre-school. He was in special ed up until the school discharged him in 2nd grade (much to my dismay). Since then I have fought to get him back in, and to have him tested for learning disabilities. At my last meeting with the school last month, I was told that my son academically is at a 2nd grade level in all aspects. Guess what, he's in 4th grade! They didn't think that this was an issue. Well it is an issue, and I'm hoping it'll be dealt with soon. But I doubt it.

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  6. Hey girl, It's so good to see you again. It sounds like your life is crazy busy and stressful right now. I am sorry about your kids challenges, but I am proud of you for facing it head on. Are you happy to be in Philly to take care of it? (btw, GO YANKEES!) 😉 It's crazy to move isn't it. It's crazy crazy. Still trying to set up.

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  7. You got a plate full, and doing it all by yourself! You rock! As for preschool – happy day. Can't you just drive both kids to school? (this coming from someone who has driven kids for 20 years straight to school and back) Drop dd off then take son to school?And good luck with the diagnoses, I hope you find your answers.And boys can just be… quirky! I have four of them. lol

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  8. I think it's great that you're looking for some resources and maybe some guidance on Thor. Plus the school for your daughter sounds fab! You're clearly very tuned into both of your children and that's beautiful to see!

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  9. Good. i am glad you are figuring out what you need to for Thor. ASD is a hard one, but you'll get it figured out. There is such an amazing spectrum for autism.I've head a saying…”If you know one child with autism, you know one child with autism.” There is such a vast array. Keeping you in our thoughts

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  10. So glad you shared with us. My son is an AS kid and is totally mainstreamed. Having the diagnosis, while frightening at first, has been a dream. With the diagnosis, the school is REQUIRED by federal laws to provide EVEYRTHING he needs to get an education in the public school system. I have a wonderful book that outlines the federal guidelines and how they pertain to Autism Spectrum kids in school systems. email me if you would like the info. Also, Dr. Mark Mintz in Voorhees, NJ is a wonderful neropsychologist who I think is associated with CHOP. He diagnosed my son and the practice offers great therapies depending on the needs of the child. I didn't use them for Son's therapies because they were too far away from my home.Good luck! I know parents want their children to be healthy but when there is something wrong, the earlier they get help, the better off they are!

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  11. I like this idea of naked truth. I'm more of a bottle it up kind of gal, but I think sharing is liberating, I might have to borrow it. I know sometimes life gets a little tense, I've been having routine freak outs myself lately. But it will pass.I hope you get some answers as far as your son, not knowing makes it harder sometimes. And I would so drive 20 minutes for four quiet hours. 😉

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  12. Somehow you'll figure out how to get both kids where they need to be and have that 4 hours of bliss… ;)My nephew is autistic – and brilliant. 🙂 I hope you get some answers for Thor soon – it's the 'not knowing' and the 'hurry up and wait' that can be so frustrating. ((HUGZ!))

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  13. Sending you a BIG gold star. I volunteer for an organization treating kids on the autism spectrum. From high functioning with ASD to Severe Behavior. There are leaps to go in terms of information but there are SOOOO many resources available including parent groups. Good luck with all the juggling.

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